Ethical Goals of Community Consultation in Research

Neal Dickert; Jeremy Sugarman
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In response to the traditional emphasis on the rights, interests, and well-being of individual research subjects, there has been growing attention focused on the importance of involving communities in research development and approval.

Community consultation is a particularly common method of involving communities. However, the fundamental ethical goals of community consultation have not been delineated, which makes it diffifult for investigators, sponsors, and institutional review boards to design and evaluate consultation effotrs.

Community consultation must be tailored to the communities in which it is conducted, but the purpose of consultation -the ethical goals it is designed to achieve- should be universal. This resouce proposes four ethical goals that give investigators, sponsors, institutional review boards, and communities a framework for evaluating community consultation processes.

This resource is a 5 page PDF, available in English.